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In memory of
Matthew "Matt" Ignatius Sullivan
Background
Matt and other members of his family were diagnosed with this rare genetic disorder known as HHT. Due to the lack of awareness to this disorder, doctors were unable to help Matt when he needed them the most. More than anything, Matt's family wants to help raise the awareness of this life threatening disorder to ensure that more hospitals and doctors are able to help the rest in need!
Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic blood vessel disorder that is often unrecognized and misdiagnosed.
Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic disorder that causes malformed blood vessels and can affect multiple organs of the body. The disorder is also sometimes referred to as Osler-Weber-Rendu (OWR) after several doctors who studied HHT in the late 1800s. HHT is considered a blood vessel disorder, which leads to bleeding. More than a hundred years later, HHT is still often misdiagnosed and many doctors do not understand all of its manifestations. Contribute
Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic blood vessel disorder that is often unrecognized and misdiagnosed.
Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic disorder that causes malformed blood vessels and can affect multiple organs of the body. The disorder is also sometimes referred to as Osler-Weber-Rendu (OWR) after several doctors who studied HHT in the late 1800s. HHT is considered a blood vessel disorder, which leads to bleeding. More than a hundred years later, HHT is still often misdiagnosed and many doctors do not understand all of its manifestations. Contribute
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Created with love by
Kassidi Sullivan (Matt's sister-in-law) and
Andrew Sullivan (Matt's brother).
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