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In memory of
Damali Reid
December 12, 1976 - March 9, 2026
Dec 12, 1976 - Mar 9, 2026
In lieu of flowers
Please consider a contribution to Sickle Cell Disease Association of America.
$1,660.00
contributed by 18 people
Show your support:
Contribute
Background
Damali was diagnosed with sickle cell disease at just six months old, during a time when understanding of the disease was limited and comprehensive care was still evolving. Pain crises were often misunderstood, resources were scarce, and families were left to figure things out on their own. Her parents refused to accept that. They learned everything they could, asked hard questions, and insisted that their daughter receive not just treatment, but respect. They fought for information, for quality care, and for a voice in rooms where patient families were too often unheard. Their advocacy became the example Damali would follow.
As she grew, Damali turned her lived experience into a calling. She did not allow sickle cell to define her — she used it to fuel her purpose. Through her work with the Sickle Cell Disease Association of America, Greater Boston Chapter, she supported families, educated communities, and helped shine a light on a disease that has long been overlooked. She later founded SAFE (Sickle Cell Advocacy and Family Education), creating a space where patients and families could find reliable information, encouragement, and the tools to advocate for themselves. She believed deeply that knowledge is power, and that every patient deserves to be treated with dignity and believed when they speak about their pain.
Damali also lived to see something once thought impossible: real scientific breakthroughs offering the possibility of a cure. Advances in gene-based therapies, including CRISPR technology, have opened doors that previous generations could only hope for. But she understood something equally important — a cure only matters if people can access it. Too many families still face barriers because of cost, limited treatment centers, and systemic inequities in healthcare. For Damali, justice in medicine was just as important as discovery in the lab.
To honor her life is to continue the work she cared about so deeply. This fund will support sickle cell research and expand equitable access to curative care, ensuring that hope reaches every family — not just those with the means to afford it. In giving, you help carry forward Damali’s voice, her advocacy, and her unwavering belief that better is possible for the sickle cell community. Contribute to Sickle Cell Disease Association of America
As she grew, Damali turned her lived experience into a calling. She did not allow sickle cell to define her — she used it to fuel her purpose. Through her work with the Sickle Cell Disease Association of America, Greater Boston Chapter, she supported families, educated communities, and helped shine a light on a disease that has long been overlooked. She later founded SAFE (Sickle Cell Advocacy and Family Education), creating a space where patients and families could find reliable information, encouragement, and the tools to advocate for themselves. She believed deeply that knowledge is power, and that every patient deserves to be treated with dignity and believed when they speak about their pain.
Damali also lived to see something once thought impossible: real scientific breakthroughs offering the possibility of a cure. Advances in gene-based therapies, including CRISPR technology, have opened doors that previous generations could only hope for. But she understood something equally important — a cure only matters if people can access it. Too many families still face barriers because of cost, limited treatment centers, and systemic inequities in healthcare. For Damali, justice in medicine was just as important as discovery in the lab.
To honor her life is to continue the work she cared about so deeply. This fund will support sickle cell research and expand equitable access to curative care, ensuring that hope reaches every family — not just those with the means to afford it. In giving, you help carry forward Damali’s voice, her advocacy, and her unwavering belief that better is possible for the sickle cell community. Contribute to Sickle Cell Disease Association of America
All contributions made to Sickle Cell Disease Association of America through Ever Loved will be sent with the designation, “Gifts to this fund will support sickle cell research and advance equitable access to curative care.”, at Isaiah reid's request.
Recent contributions to Sickle Cell Disease Association of America
$25.00
April 4, 2026, 12:49 p.m. PDT
$100.00
April 2, 2026, 2:58 p.m. PDT
$25.00
April 1, 2026, 6:46 a.m. PDT
$25.00
March 30, 2026, 8:43 a.m. PDT
$60.00
March 27, 2026, 3:39 a.m. PDT
$75.00
March 22, 2026, 5:57 a.m. PDT
Kevin and Emily Costello
$250.00
Submitted by Kevin Costello on
March 21, 2026, 7:50 a.m. PDT
$50.00
March 20, 2026, 8:14 p.m. PDT
$100.00
March 20, 2026, 1:15 p.m. PDT
March 20, 2026, 12:39 p.m. PDT
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March 20, 2026, 6:46 a.m. PDT
Newland Family
$200.00
Submitted by Maureen Newland on
March 20, 2026, 3:32 a.m. PDT
$100.00
March 19, 2026, 11:04 a.m. PDT
Anonymous
$100.00
March 17, 2026, 6:17 a.m. PDT
$100.00
March 16, 2026, 9:04 a.m. PDT
$100.00
March 16, 2026, 7:29 a.m. PDT
Anonymous
$100.00
March 16, 2026, 5:28 a.m. PDT
$100.00
March 15, 2026, 6:55 p.m. PDT
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Memories & condolences
Sending so much love to the whole Reid family. - Kevin and Emily
Sending so much love to the whole Reid family. - Kevin and Emily
Sending so much love to the whole Reid family. - Kevin and Emily
Condolences to Linda and the entire family. My heart aches for you. Damali was a beautiful person on the inside and t…
Condolences to Linda and the entire family. My heart aches for you. Damali was a beautiful person …
Condolences to Linda and the entire family. My heart aches for y…
In lieu of flowers
Please consider a contribution to Sickle Cell Disease Association of America.
$1,660.00
contributed by 18 people
Show your support:
Contribute
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Isaiah reid (Damali's brother).
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