We will send an invite after you submit!
In memory of
Cheyenne "Chey" David HILL
-
-
-
-
-
-
Who else knew Chey?
Photo
In lieu of flowers
Please consider a donation to Help with funeral expenses.
$1,200
goal
How you can help
My name is Tora DeSante. I am the only biological sibling left alive. I am the biological sister of my brother, Cheyenne Hill.
Cheyenne sadly passed away at 9:43 am on April 16th. Cheyenne suffered from Hunter's Syndrome. He was my love, rock, and reason to keep up the fight for what was right for him. Throughout his life, from a young boy, he was able to understand, talk, and act normally. He was my best friend. Over the years, his ability to speak took a massive decline, along with his mobility. Cheyenne may not have been able to speak to me, but he understood I was his sister (his keeper). He could recognize and understand my husband Mike and our three children: Michael Jr. (age 11), Gabriel (age 10), and Gianna (age 9). We are his only biological family left. His passing has rocked the family to the core. Upon his passing, there has been no service or anything set up as a memorial or gathering to celebrate his life, our family is trying to raise money to pay for services.
I am hoping to raise enough money to pay for his cremation and to have a service in his memory. Along with making a donation in his name for MPSII and our church.
With Cheyenne's Hunter syndrome, he was gifted by our other biological older brother at the age of 4 with a bone marrow transplant that took place in CHOP Children's Hospital, Philadelphia, where my brother Jimmy, age 5 at the time, was a perfect match and Cheyenne's lifesaver. Our siblings were broken up in our adoption. My brother went with another foster family and was adopted when he was 8. My brother Cheyenne and I were fostered up until our father's death in 1992, where we then were adopted in 1993. My brothers and I were each other's rock throughout our lives.
Most people with Hunter syndrome don't make it past their mid-teens. It has been very hard through the years seeing the massive decline from him being able to do everything and communicate everything, to at the end of his life, he was only able to grunt and groan. He was trapped from within. Whenever encountering Cheyenne, a simple rub on the head, a hug, and an embrace would calm down those grunts and groans to absolute peace and serenity. The countless hours my husband and I and our children, his nephews and niece, spent with their brother/brother-in-law and uncle watching movies, cuddling up, and spending time together are all the memories they have left.
My brother sadly passed away at the age of 36. Cheyenne was so special; his smile could light up a room, it was as bright as the brightest star, his laugh was so infectious, and anybody he ever came across, he would just reach out for your hand and hold on tight. Every moment spent with him was a gift, and I was so thankful for the 36 years we were blessed with him.
Hunter syndrome, also known as mucopolysaccharidosis type II (MPS II), is a rare, inherited metabolic disorder that affects how lysosomes function in cells. It's caused by a deficiency in the lysosomal enzyme iduronate-2-sulfatase (IDS), which leads to a buildup of large sugar molecules in the body's tissues. Hunter syndrome primarily affects males but has been reported in a few girls.
Unfortunately, this has taken my half-brother at the age of 12 in 1998. It has been a long journey seeing Cheyenne graduate high school at the age of 21 in 2010 from Child Career Development Center in Coatesville, such an accomplishment. He was such a wonderful man, and he will be greatly missed. He may not be here with us in body, but I know he is up in heaven dancing and celebrating with the rest of our family, released from the torture put upon his body due to Hunter syndrome and many other circumstances.
Both my husband and I are on disability and have a very fixed income. We are unable to give my brother the proper cremation service alone.
I ask for your help in reaching our goal to provide a proper cremation and celebration of life. And any money left over will be donated in Cheyennes honor to Glad tidings GT church and MPS II!!!
Thank you for reading, and if you donated, we greatly appreciate it all, no matter how big or small. Our goal is to give Cheyenne the proper goodbyes because he deserves every bit of it. GT Glad Tidings Church the church in West Lawn our family attends. I spoke to the senior Pastor Karey Schaeffee where the service will be held once he is cremated and ashes are given to me. It will be open to the public. You may not have seen or known him, but if you would like to attend when scheduled, we would love to meet you and celebrate his life here on this earth.
To give him a service and cremation. As of now, the money we are raising is for the cost for his cremation, urn, and service and lunch in. And we wish to bring his ashes home. No burial. Any extra will be donated.... in his honor.
At this moment, there is no set date for service. We are waiting on cremation to be back, and any of the other money raised will be going towards his service (flowers, urn, and lunch in) and then all the rest will be donated in Cheyennes honor to MPS II and our Church Glad Tidings of West Lawn.
We're hoping that we can have a service within the next couple of months. Around July or August!
We thank you from the depths of our hearts and souls. May God bless you and your family.
The DeSante Family
Tora, Mike, Michael Jr., Gabriel, Gianna
& Most of all, Cheyenne
Thank you so much for your thoughtfulness and support in this hard time for our family. If you would like to send our family a card via the mail, I can give you the address if you would like. Just private message me!
Cheyenne thanks you!!! ❤️❤️
Please share the link so others can read his story and share and help us raise our goal. Contribute
Cheyenne sadly passed away at 9:43 am on April 16th. Cheyenne suffered from Hunter's Syndrome. He was my love, rock, and reason to keep up the fight for what was right for him. Throughout his life, from a young boy, he was able to understand, talk, and act normally. He was my best friend. Over the years, his ability to speak took a massive decline, along with his mobility. Cheyenne may not have been able to speak to me, but he understood I was his sister (his keeper). He could recognize and understand my husband Mike and our three children: Michael Jr. (age 11), Gabriel (age 10), and Gianna (age 9). We are his only biological family left. His passing has rocked the family to the core. Upon his passing, there has been no service or anything set up as a memorial or gathering to celebrate his life, our family is trying to raise money to pay for services.
I am hoping to raise enough money to pay for his cremation and to have a service in his memory. Along with making a donation in his name for MPSII and our church.
With Cheyenne's Hunter syndrome, he was gifted by our other biological older brother at the age of 4 with a bone marrow transplant that took place in CHOP Children's Hospital, Philadelphia, where my brother Jimmy, age 5 at the time, was a perfect match and Cheyenne's lifesaver. Our siblings were broken up in our adoption. My brother went with another foster family and was adopted when he was 8. My brother Cheyenne and I were fostered up until our father's death in 1992, where we then were adopted in 1993. My brothers and I were each other's rock throughout our lives.
Most people with Hunter syndrome don't make it past their mid-teens. It has been very hard through the years seeing the massive decline from him being able to do everything and communicate everything, to at the end of his life, he was only able to grunt and groan. He was trapped from within. Whenever encountering Cheyenne, a simple rub on the head, a hug, and an embrace would calm down those grunts and groans to absolute peace and serenity. The countless hours my husband and I and our children, his nephews and niece, spent with their brother/brother-in-law and uncle watching movies, cuddling up, and spending time together are all the memories they have left.
My brother sadly passed away at the age of 36. Cheyenne was so special; his smile could light up a room, it was as bright as the brightest star, his laugh was so infectious, and anybody he ever came across, he would just reach out for your hand and hold on tight. Every moment spent with him was a gift, and I was so thankful for the 36 years we were blessed with him.
Hunter syndrome, also known as mucopolysaccharidosis type II (MPS II), is a rare, inherited metabolic disorder that affects how lysosomes function in cells. It's caused by a deficiency in the lysosomal enzyme iduronate-2-sulfatase (IDS), which leads to a buildup of large sugar molecules in the body's tissues. Hunter syndrome primarily affects males but has been reported in a few girls.
Unfortunately, this has taken my half-brother at the age of 12 in 1998. It has been a long journey seeing Cheyenne graduate high school at the age of 21 in 2010 from Child Career Development Center in Coatesville, such an accomplishment. He was such a wonderful man, and he will be greatly missed. He may not be here with us in body, but I know he is up in heaven dancing and celebrating with the rest of our family, released from the torture put upon his body due to Hunter syndrome and many other circumstances.
Both my husband and I are on disability and have a very fixed income. We are unable to give my brother the proper cremation service alone.
I ask for your help in reaching our goal to provide a proper cremation and celebration of life. And any money left over will be donated in Cheyennes honor to Glad tidings GT church and MPS II!!!
Thank you for reading, and if you donated, we greatly appreciate it all, no matter how big or small. Our goal is to give Cheyenne the proper goodbyes because he deserves every bit of it. GT Glad Tidings Church the church in West Lawn our family attends. I spoke to the senior Pastor Karey Schaeffee where the service will be held once he is cremated and ashes are given to me. It will be open to the public. You may not have seen or known him, but if you would like to attend when scheduled, we would love to meet you and celebrate his life here on this earth.
To give him a service and cremation. As of now, the money we are raising is for the cost for his cremation, urn, and service and lunch in. And we wish to bring his ashes home. No burial. Any extra will be donated.... in his honor.
At this moment, there is no set date for service. We are waiting on cremation to be back, and any of the other money raised will be going towards his service (flowers, urn, and lunch in) and then all the rest will be donated in Cheyennes honor to MPS II and our Church Glad Tidings of West Lawn.
We're hoping that we can have a service within the next couple of months. Around July or August!
We thank you from the depths of our hearts and souls. May God bless you and your family.
The DeSante Family
Tora, Mike, Michael Jr., Gabriel, Gianna
& Most of all, Cheyenne
Thank you so much for your thoughtfulness and support in this hard time for our family. If you would like to send our family a card via the mail, I can give you the address if you would like. Just private message me!
Cheyenne thanks you!!! ❤️❤️
Please share the link so others can read his story and share and help us raise our goal. Contribute
Send flowers
Share your sympathy. Send flowers from a local florist to Chey's family or funeral.
Events are still being organized
Want to be notified?
We are hoping to have a service for him in July or August at our church Glad Tidings Church in West Lawn
Timeline
Born
November 28th, 1988
Passed away
April 16th, 2025
Honey Brook, PA
Survived by
Tora DeSante
Sister
Mike Desante
Brother-in-law
Michael Desante Jr.
Nephew
Gabriel DeSante
Nephew
Gianna DeSante
Niece
Predeceased by
Jimmy Willett
Brother, 1987-2012
Other key details
Cause of death
Hunters Syndrome
Method of disposition
Cremation
Funeral services provided by
Wentz Funeral Home
In lieu of flowers
Please consider a donation to Help with funeral expenses.
$1,200
goal
Send flowers
Share your sympathy. Send flowers from a local florist to Chey's family or funeral.
Share this memorial website
How you can help
Share with others
Donate in memory
Created with love by
Tora DeSante (Chey's sister).
